We're still hanging in there, can't really say that the poo situation is any different - maybe marginally better but to be honest I'm poo blind at this stage. Every nappy has kind of merged into one - I've lost my ability to distinguish between watery, mucousy, extremely runny, slightly thicker or even my own personal favourite, pasty! At least we know now that we have over shot on the dose of anti rejection drugs as Rory's immune system is now temporarily shot! He is in complete isolation and no one can enter his room without a mask!- However, his bloods are already improving as we have significantly cut the dose so we would expect to see a big improvement in his immune system in the next few days.
I have been, as always, so impressed by the attention to detail carried out by the team. They are intimately acquainted with every nappy and what drugs or feed recipe preceded it. Everything is plotted in anorak detail, it puts trainspotting in the ha'penny place! Nothing in Rory's care plan is changed without detailed discussion with me and my opinions are always taken into account. If you do have to be locked in a hospital room for weeks on end it is very helpful to have a say in what's happening.
When I get restless it helps to think of the longer term aim, it's worth putting in these frustrating weeks to ensure the longest possible life for this amazing kidney. When we are finally released from our incarceration - you won't see us for dust. Take note all of you out there with spare rooms in far flung places you may want to review any hastily issued invitations, once we get travelling, no guest room on the planet will be safe!